Ben is an inspirational young man living with Prader-Willi Syndrome, Melbourne, Australia. He is sixteen years old and one day would like to live in his own home. Living with Prader-Willi Syndrome has it’s challenges and living independently is difficult and rarely achieved due to the excessive appetite which can lead to morbid obesity and premature death.

Ben enjoys doing puzzles, playing on his playstation and his electric guitar. One day he would like to be able to go shopping, own his own home, with a wife and baby to love.

Ben’s parents would like the best for him and would like to believe that one day, there will be a place for Ben to call home.

Ben is the first Youth Ambassador for Prader-Willi Syndrome 2014, sharing his story.

BEN