Who we are

The Prader-Willi Syndrome Better Living Foundation (PWSBLF) is a not-for-profit organisation that was established in September 2013.

Our vision is to enable young people and adults living with Prader-Willi Syndrome to lead quality and rich lives, with equal opportunities to live independently and engage in their communities.

With a commitment to best practise, research, innovation, local and global expert collaborations, the PWSBLF is best positioned to address the existing inadequacies related to housing for adults with PWS.

The PWSBLF and the Prader-Willi Syndrome Association of Victoria Inc are partnering to provide support and solutions to PWS families in accessing housing and support.

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BOARD OF DIRECTORS

The PWS Better Living Foundation Board is a diverse group of professionals including parents of young adults with PWS.  The foundation was established to research and seek a solution for suitable housing for young people and adults living with PWS in Victoria who were wanting to move out of home.

FOUNDING DIRECTORS
Dan O’Brien

Director

Dan is the founder and Chairman of The Hydration Pharmaceuticals Trust, the owner of the Hydralyte range of pharmaceutical products.

Tina Costanzo

Director

Tina Costanzo has extensive business, sales and account management experience in a number of industries including the Information Technology sector and not for profit sector.

Dr. Bernard Saw

Director

Bernard has 35 years’ extensive management experience with several leading multinational companies in the Asia Pacific region.

James O’Brien

Director

James O’Brien has 15 years’ experience working in the disability sector and 30 years in property development.

Our Mission

Our mission is to establish best practice model of housing, accomodation for young people and adults living with Prader-Willi Syndrome (PWS) in Victoria and to improve quality of life.

Strategic Objectives for 2014-2017

1. Governance: Establishing a solid and strong foundation for The PWS Better Living Foundation

2. Best practice: To develop a best practise model of accommodation, housing in Victoria for young people and adults living with Prader-Willi Syndrome

3. Sustainability: Providing for the future

4. Standards of Care: Improving the quality of lives of young people and adults living with Prader-Willi Syndrome through Youth Ambassador program, PWS Caregiver forums, resources and support

Our Values

A person centred approach - to first and foremost seek to enhance the quality of life of people and families affected by PWS.

Equity - the right of people with PWS to be treated with dignity and respect.

Ethicality - to work with integrity, objectivity, accountability, openness, honesty and clear leadership.